Come with us to meet Parveen Khan, who works as a Bilingual Memory Navigator for Carers Support West Sussex. Parveen supports unpaid carers in Crawley who are from the South Asian community and who have a family member with dementia.

Parveen has just completed our My Future Care training. She is currently testing out what she has learned to discover what works best for the people she supports.

Read on to find out what she had to say.

What kind of challenges do the people you work with face when it comes to making plans for later life?

The South Asian community has its own dynamics when it comes to thinking about health, care and any future planning. I have found through my work that some decisions are kept right to the end.

Families rarely talk about death or the grieving process.

Living in extended families it is always expected that the person living with dementia will be looked after – but there is often no conversation about how the carer or the rest of the family will cope or deal with the situation in real-time.

Culture, religion and expectations around these bring their own challenges. Different generations can have different outlooks on life and different priorities.

Death can be a taboo subject and so can dementia.

How do you hope that the My Future Care Handbooks and support will help you better meet people’s needs?

The My Future Care Handbook is an excellent tool and resource for my carers. It brings together many elements of a caring role and issues that need to be thought about now as well as in the future.

The My Future Care Handbook takes a practical attitude and approach. This is very much needed in an emotional situation.

It also helps people to be less afraid of having conversations with family and friends.

The Handbook is very much person-focused – it includes healthy eating, exercise and sections about a person’s life story. I think this is really important and helpful as it celebrates the life of the person and leaves a part of them to be remembered when they are gone.

How have you engaged with people so far?

I have been giving out Handbooks to carers who come to my “yeh dosti” sessions, which means “this friendship” in Hindi.

It depends on opportunity, time and when they are free, but I plan to spend some time on a one-to-one basis with them, to help them make their action plans. Face-to-face is always better.

Thank you Parveen for sharing insights into the community that you support and your plans for using the My Future Care Handbooks to help people meaningfully engage with later life and advance care planning.

Feeling inspired by Parveen’s story? Would you like to upskill your team to support people in making plans for later and future care?

Take advantage of our free training and ongoing support programme. Our online training will equip your team to help the people you work with make an action plan and see it through, using the My Future Care Handbook as a source of information and structure for the conversation. (Handbooks are also available free in certain areas, otherwise bulk prices are available.)

Request further information.

Recommended Posts